Newborn Bloodspot 

Screening Program

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Links

• America Academy of Pediatrics: Provides lots of information on pediatric health issues; information on newborn screening is provided under the “Policy Statements”
• The California Newborn Screening Program: Click on "educational materials" for information on newborn screening in several different languages: English, Korean, Hmong, Spanish, Tagalog, Laotian, Chinese, Vietnamese, and Cambodian.
• CARES Foundation: Provides information on education and research for Congenital Adrenal Hyperplasia as well as resources for the latest information on management.
• CDC: Provides quality assurance and program oversight of state and regional screening laboratories
• Newbornscreening.info: Provides information for parents and health care professionals on testing with tandem mass spectrometry
• Maternal and Child Health Bureau: Good source of information on children with special health care needs.
• National Newborn Screening and Genetics Resource Center: Provides information and resources in the areas of newborn screening and genetics
• New Era in Newborn Screening — Saving Lives, Improving Outcomes: Web cast that was originally shown on September 19, 2002
• Oregon State Health Department: Information on the Regional program of which Alaska is one of the five states in the program.
• Pacific Northwest Regional Genetics Group: Provides genetics information for providers, consumers, and educator focusing on the Alaska, Idaho, Oregon, and Washington areas.
• University of Washington PKU Clinic: Provides resources to families of children with PKU.