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Newborn Bloodspot Screening Program: Links
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Newborn Bloodspot Screening Program
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America Academy of Pediatrics
:
Provides lots of information on pediatric health issues; information on newborn screening is provided under the “Policy Statements”
The California Newborn Screening Program
:
Click on "educational materials" for information on newborn screening in several different languages:
English, Korean, Hmong, Spanish, Tagalog, Laotian, Chinese, Vietnamese, and Cambodian.
CARES Foundation:
Provides information on education and research for Congenital Adrenal Hyperplasia as well as resources for the latest information on management.
CDC
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Provides quality assurance and program oversight of state and regional screening laboratories
Newbornscreening.info
:
Provides information for parents and health care professionals on testing with tandem mass spectrometry
Maternal and Child Health Bureau
:
Good source of information on children with special health care needs.
National Newborn Screening and Genetics Resource Center
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Provides information and resources in the areas of newborn screening and genetics
New Era in Newborn Screening — Saving Lives, Improving Outcomes
:
Web cast that was originally shown on September 19, 2002
Oregon State Health Department
:
Information on the Regional program of which Alaska is one of the five states in the program.
Pacific Northwest Regional Genetics Group
:
Provides genetics information for providers, consumers, and educator focusing on the Alaska, Idaho, Oregon, and Washington areas.
University of Washington PKU Clinic
:
Provides resources to families of children with PKU.
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